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Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

This all-volunteer group educates men and women about the ongoing effects of the drug DES given to pregnant women from 1940-1970, primarily. It turned out that the drug had no positive effect for the mothers but increased the incidence of a rare cancer in their daughters. As these women grew older, other adverse effects (such as infertility and miscarriage) were noticed and continue to be reported, even as some of them reach 80 years old. Some of the daughters' sons and daughters have also had adverse effects.
I am a DES daughter and have experienced some relatively mild effects. I had been aware since 1970 that it was important for me to have special test during my annual gynecological exam, but guidelines from medical organizations, the government and insurance companies change so several years ago I did an internet search to see what the current guidelines were.
That is how I found DES Action USA. Their online materials not only gave me easy to understand information for my annual exam, but also about current research, newly discovered concerns that could affect me and my children, and the experiences of other women. Finding DES Action woke me up to this issue as a part of my life about which I needed to be more informed and involved, with the support of a group of admirable women.

Role:  Donor