My Nonprofit Reviews

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2 reviews

Review for Pulmonary Fibrosis Association of Texas Inc, Houston, TX, USA

Rating: 5 stars  

Pulmonary Fibrosis Association of Texas has helped me whenever I have questions, need support, want to advocate for legislation to improve, promote, create awareness to the public, legislators, health care providers, doctors and family members. Time is now to reintroduce Pulmonary Fibrosis Research Enhancement Act contact you House of Representatives, Senators, anyone and everyone. Pulmonary Fibrosis literally TAKES YOUR BREATH AWAY. Sadly PF was cited as a disease to be included in funding, however it was not included when final funding was approved. Houston is the opposite side of Texas from where I live in El Paso. One person will make a difference, everyone together wil be the difference. Thank You, Karl Kingan P.S. PF has no cure no treatment no funding and is a progressive disease with the only hope of living each day to the best of your ability everyday realizing that limits to what you can and can not do are our future for tose of us who have this disease and those that will be diagnosed in the futuree unless funding is found to at least find some to halt if not reverse the progressive scarring of the lungs which occurs. If you have Idiopathic Pulmonary Fibrosis at best your life expectancy is 5 years. Some live longer other people die sooner. Take a DEEP BREATH and realize how precious it is to be able to breathe.

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Role:  Client Served

Review for Pulmonary Fibrosis Association of Texas Inc, Houston, TX, USA

Rating: 5 stars  

Diagnosed with scarred lungs April 17, 2010 after having tests done by my Pulmonologist, this is where I go to information, support others, share my stories hopes nad concerns. My doctor said to wait six months. I was glad to hear that their response was SIX MONTHS!!!!! My goodness I said WhazUp indeed. They have offered to help support encouragement and to help me get a second opinion. i want to start a Pulmonary Support group here in El Paso, Texas with teir help.
Help to pass the Pulmonary Fibrosis Research Enhancement Act contact your Senators & Congressmen/women. pulmonary disorders are the third largest cause of death in the United States.

I've personally experienced the results of this organization in...

Help received and gratification of helping others.

If I had to make changes to this organization, I would...

Start an El Paso Chapter of this organization here in El Paso, Texas.

Role:  Client Served & I am sending my records for a second opinion.