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Review for FRAXA Research Foundation, Newburyport, MA, USA

Rating: 5 stars  

This organization has been with us since we first learned of our child's disability (actually, it was identified very nearly to when we heard the diagnosis - they were the first to acknowledge it).
The support of this grass-roots group gave us the hope we needed. They filled in where we felt devastated.
But most of all, they never wavered from their mission: to find a cure for fragile x syndrome, which is all we wanted. We didn't want to educate doctors or scientists; that was already being done. Our hope was a cure! And - they've stayed on task for thirty years, with hopeful research and continuing information about this devastating disability keeping us going the whole time.
We are grateful for their perseverance and dedication.

Role:  Client Served