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ryleighb

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1 reviews

Review for Cota Childrens Organ Transplant Association Inc, Bloomington, IN, USA

Rating: 2 stars  

I appreciate all that COTA has done. But I want to make this clear . My family and friends raised over 60,000 for my sons liver transplant and my employer as well we worked very hard and spent money on t-shirts food trucks bounce houses, etc to raise money . We spent money to raise money to have a fundraiser for him. And my son expirenced strokes right after his transplant the major surgery caused him to expirence a metabolic crisis unfortunately and needs more assistance with therapies etc and therapeutic tools / toys to help him improve. And they don't think that is transplant- related. Basically if I would have known how this worked we would have just made a GOFUND me instead. They didn't help us manage a fundraiser all we used was there name for our fundraiser. It a big disappointment. I feel like we were mislead by the CEO before we chose to use them. I am really getting tired of people bsing when it comes to our son. Its like we have the worst luck really. I would really like to know what they plan on doing with bentleys money that is not being used . I asked the CEO if it can go to Bentley's education needs and also he will always need assistance for the rest of his life due to he has some brain damage as well and lost his eye sight as well from his stroke and the CEO said no that is not transplant related. I'm thinking about getting a second opinion because again we my family and friends and job spent money to raise money and months and time for my son who will always need help and assistance.

Role:  Donor