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Terri Ann E.

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1 reviews

Review for No Stomach For Cancer, Madison, WI, USA

Rating: 5 stars  

I do not have a stomach, in 2017 i had Cancer of the oesophagus, anyway i was supposed to have a part of it removed and the top of my stomach and the lymph nodes removed, which happened but the surgeon who was going to do it was on holiday, and because the op had to be done within the chemo window i had to have it done on Saturday 22nd July 2017, so the surgeon who did it was a bariatric surgeon who specialised in keyhole surgery, my original surgeon was going to do it open, but this stand in surgeon convinced me that keyhole would be a whole lot better for all kinds of reason so i agreed and it seemed to work and quite quickly the moved me from the ITU to a ward, apparently i passed all the tests, my partner came to see me and as the hours went on he realised something wasn't quite right, and within hours my chest had turned black, i cannot remember anything about all this, but at 3am on the Monday morning the head of upper GI called my partner saying that he had had to rush me back into surgery and remove my entire stomach and majority of my oesophagus because it had gone gangrene due to the main artery to my stomach getting blocked (if it had been done by open surgery it would have been spotted, downside of keyhole) , any how as a result of this gangrene i got sepsis of the lungs that tore them apart and i had to have stents fitted to fix my lungs, i was then in a coma for 8 weeks and they were preparing my family for me to die, i eventually got out of hospital in early October 2017 after having to learn to walk again, i had a stoma bag fitted to my neck for fluids, and a feeding tube in my jejunum, when i came out of hospital i was in and out of the local hospital with chest infections due to the stents getting infected, i eventually had them removed in April 2018 and they said one of three things could happen 1) the tears could be fixed (which they doubted) 2) the tears could still be there and the stents needed replacing and 3 ) i could die so my theory was i wasn't supposed to be alive so i told them to do the op knowing it might kill me, but strangely option 1 was the outcome the least expected. I still had the stoma bag and the jej tube until i had my reconstruction op in Feb 2019, the op was called a colonic resection, where part of my colon was removed and put in place to act as my new oesophagus. My problems are very much like what you are all suffering, i.e. dump syndrome, reflux that ends up with aspiration of my lungs was in hospital twice in August with IV antibiotics to shift the infection, but i think i have it again, my hair falls out, my skin is flaky and dry, i have skin peeling off my feet in sheets and lots of pain, i have to take Creons (pancreatic enzymes) with meals that helps the pancreas digest my meals apparently. Before i had my resection i got admitted to hospital to have my appendix out, now i am waiting to have my gall bladder removed (i am on morphine til they do this but its not causing any blockages so no urgency as yet, so with covid everything is delayed, i seem to have excess space in my abdomen area I had a bout of diarrhea which was black so my docs did a sit test and found it was blood they took a 2nd one and i thought it looked ok but they said there is still blood so i am now waiting for a colonscopy as well, as you can imagine i do not feel well BUT all my stats and bloods are fine so thats all they worry about, and i did drop from a UK size 22/24 (US 18/20) to a UK size 8/10 (US 4/6) but i have gained enough weight now to be a UK size 14 (US 10) So i am obviously eating enough to stay healthy, plus i take multi vitamins just to make sure. I now want to go on a diet but as my eating problems are getting to me i think i may end up not eating for a while and losing weight.
Sorry for the long story but i thought i would explain my situation.
I am in the UK and under gthe care of Mr Maynard at the Churchill Hospital in Oxford.

Role:  General Member of the Public