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runnerlisa9

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Review for Cholangiocarcinoma Foundation, Herriman, UT, USA

Rating: 5 stars  

When you or your loved one receives the diagnosis of cholangiocarcinoma it is devastating. And then when you research statistics it is even more devastating. In addition to the devastating diagnosis, these is initially a sense of isolation because this is a rare cancer.

Through a social group, I connected with a gentleman who lost his husband to cholangiocarcinoma and he very kindly directed me to the Cholangiocarcinoma Foundation for help in navigating the many hurdles ahead. Through the Cholangiocarcinoma Foundation, I’ve been able to research oncologists with experience with this type of cancer, participate in educational webinars, connect with other caregivers, and participate in fundraising initiatives.

Most importantly, we are so
Incredibly grateful to have the help of a phenomenal patient advocate. This patient advocate’s knowledge and compassion has made a huge difference in that we no longer feel as alone in our fight. And that is the difference this amazing Foundation makes in lives.

Role:  Client Served