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Jo F.1

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2 reviews

Review for Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP), Washington, DC, USA

Rating: 5 stars  

I was diagnosed with Appendix cancer in 2019. It’s a difficult time for anyone diagnosed with cancer but having a rare cancer diagnosis adds additional challenges as there is far less information known. The depth
And extent of the information I have been able to gather from ACPMP is incredible. From the UK I’ve been able to join zoom meetings and conferences in the USA allowing me to hear from the worlds leaders in the management of this disease. It is a unique and inspirational organisation. One I’m sorry I needed but glad I found.

Role:  Client Served
 

Review for Pseudomyxoma Survivor, Warwick, , United Kingdom

Rating: 5 stars  

Being diagnosed with a rare cancer adds further stress and anxiety to an already difficult time. It was such a relief to find this charity early in my journey. They have me hope through the information and resources they provide and gave me huge support through the buddy system and members of the Facebook group. Through the ever growing skills of the expert surgeons I have a future I never imagined I’d get after my diagnosis.

Role:  Client Served

Jo F.1, you've summed it up, being diagnosed with a rare cancer does add anxiety and stress - and we know that as we are predominantly patients ourselves which we feel is one of our great strengths. Thank you for your comments.