My Nonprofit Reviews
Review for Dysautonomia Support Network, Providence, RI, USA
I am the husband to a wonderful wife that has POTS, EDS and other comorbidities. When she was diagnosed about 4 + years ago we were searching for information and we found it and so much more with DSN!
My wife was an active member in the DSN FB groups and eventually decided to give back and volunteer. She was a moderator for our local state chapter on FB and we both held bi-monthly in person meetings. We got so much out of meeting others who were going through what we were both patients and their families came. Lots of learning and validation happened during those meetings.
What I like best about DSN is that no matter who you are and where you are in your diagnosis they meet you right there.
We have both attended and hosted in person and live events and have enjoyed getting to know the people in our community online and in our hometown and spreading awareness and educating others about invisible illnesses-Dysautonomia.
As my wife always says; DSN gave/gives her the tools and support to "Live her best life" and she has met some amazing people who she calls her DSN family and that is priceless.
Check out their website at dysautonomiasupport.org or look them up on FB to learn more about them and how they are impacting lives everyday!