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tskouns

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2 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

The TSC Alliance has made a huge impact on my family. It has provided an avenue of support and hope while we deal with navigating the complexities of tuberous sclerosis complex. From medical research opportunities to educational aide to a shoulder to cry on, there has never been an issue that they didn't help me address.

Role:  Volunteer
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

My daughter Abby has tuberous sclerosis complex. Like most parents I felt overwhelmed with her diagnosis. Upon referral to the TS Alliance I was embraced by a community full of hope. We share each other's struggles and triumphs. There is always someone who has experienced what you are going through. I've never had an issue that the Alliance didn't immediately respond to. They were advocates in our educational system for my daughter and the funding they have procured for research has lead to the development of treatments that have directly benefitted my daughter. I am thankful for them every day.

Role:  Volunteer