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laurenperry

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2 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

My daughter Andi was diagnosed with TSC in 2014 and passed away at 11 weeks old from TSC. Since her passing my family and I have volunteered with TSC to continue to raise awareness and continued funding to one day find a cure. The TSC Alliance has welcomes my family since day 1 and continues to work together in one common goal which is to find a cure. We will continue to volunteer with them as long as we possibly can to ensure no other families have to experience what we have. We love the TSC Alliance!

Role:  Volunteer
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

The TS Alliance is an amazing organization with the biggest heart & turkey there to help no matter how big or how small the request may be. Our daughter Andi passed away in 2014 from TSC & even though we are not part of the day to day with TSC, the alliance still reaches out and lets us know how they’re doing and what upcoming things they’re working on to find a cure. My husband and myself both chair the Atlanta Region walk and have for the last 3 years & have plans to continue to do so to raise awareness so no other parents need to experience and make the decisions we had to make. We do everything in our power to keep ANDI’S memory alive & the TS alliance allows us to do that.

Role:  Volunteer