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Jeanette B.2

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1 reviews

Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

Such an inspiration this organization is in their dedication to cure a rare retinal disease. I never believed that I could do something to change the outlook for people who inherit this disease that causes blindness. A small group of people formed the foundation 20 years ago and raised money and connected scientists. They are a great resource for the families who might have never met someone with their disease. Many lifetime friendships are made through CRF as we work together to raise funds for the research. The doctors and scientists that work on CHM attend our conventions and share their input.

Role:  Volunteer