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hoffmae1

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1 reviews

Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

CRF has been life-line for me, over 20 year's in the making. This unique foundation provides resources and ongoing learning opportunities for people, like me, who live with choroideremia. But most importantly, it creates a sense of community which is very much needed. There's only an estimated 6,000 people in the US with this disease, so I always felt isolated no knowing anyone who could relate to my experience. That all changed when I discovered CRF and why I immediately raised my hand to volunteer.

Role:  Client Served