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Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

In its twenty-year history, the Choroideremia Research Foundation has evolved from a fledgling group of patient-advocates to a successful originator and funder of advanced treatments for the eponymous disease. Its international board and membership interact daily with professional staff and the medical research community. The Foundation successfully raises funds and cooperates with public and private partners in pursuit of its mission, which is nothing less than the eradication of this destructive blinding condition. It is a pleasure to work with. It has given hope to many families, including my own.

Role:  Board Member