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Judith Fallon M.

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1 reviews

Review for FRAXA Research Foundation, Newburyport, MA, USA

Rating: 5 stars  

When two of our 3 sons were diagnosed with Fragile X Syndrome 20 years ago we were devastated and unsure what the future would hold. Fortunately we found FRAXA early on and discovered a path for action. We were attracted to FRAXA because it was run by parents of kids with FX and they had a reputation of bringing families and researchers together. And to top it off, they were proven to be fiscally responsible.

We wanted to help find a cure (or effective treatments) for our sons so we, along with other local families, starting hosting fundraisers for FRAXA and have continued for the past 18 years. The team at FRAXA is so supportive and helpful. Many of them have traveled to attend our bigger events. I feel that we have a partnership in working toward a common goal.

I am happy to report that both our sons and FRAXA's progress are thriving! Now, I can't wait to see what the future brings.

Role:  Volunteer