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1 reviews


Rating: 1 stars  

I called the TSC headquarters in hopes to get help for my loved ones who are suffering severe abuse and mistreatment at the hands of TCS Alliance doctors in Southern California. My Daughter was brutalized and what did the TSC alliance say to me? These doctors make us a lot of money, there is nothing we can do. My daughter has suffered unspeakable acts of abuse and brutality by TSC doctors, and no one helps because of how much money the drug they push makes the hospital and alliance, The consumer is not priority here, profit is.

Role:  Client Served
lmoss (Nonprofit Staff) wrote:

The Tuberous Sclerosis Alliance (TS Alliance) is truly sorry to hear you are unhappy with your child’s healthcare provider(s); however, please know our organization does not employ any physicians or any other healthcare providers. In addition, the TS Alliance does not accredit any TSC Clinic or TSC Center of Excellence, and the TS Alliance does not directly provide or guide any clinical care or medical decision-making. Anyone can read our full statement about TSC Clinics on our website at We encourage you to reach out to your healthcare providers directly or to Jo Anne Nakagawa at, who can help direct your concerns.