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emilyandjohn_SCN2A

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1 reviews

Review for FamilieSCN2A Foundation, East Longmeadow, MA, USA

Rating: 5 stars  

My family has been active with this foundation for a few years, and we are thrilled by the year to year growth. The leadership is comprised of mostly SCN2A parents who decided to get organized and not only cure SCN2A, but also play a major role in supporting the community. As growth continues, one of our favorite things about the foundation is the respect and relationships formed in the research community. The foundation relies heavily on the advice and counsel of experts in order to make key decisions in research. The strength of these partnerships is a testament to the character and professionalism of the Executive Director and Co-Founder.

Role:  Board Member