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Carla M F.

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1 reviews

Review for FamilieSCN2A Foundation, East Longmeadow, MA, USA

Rating: 5 stars  

The FamilieSCN2A Foundation has changed the future of patients with SCN2A related disorders. Before this organization was formed, patients were told they were the only case of SCN2A and there was no possible treatment in the future. Now, 5 years later ... the organization has an international community of 600 families and treatments in the pipeline. There is hope for SCN2A. Thank you to the FamilieSCN2A for creating hope and be the example that we are stronger together.

Role:  Board Member