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Jaysam

17 profile views
2 reviews

Review for Clubfoot Research Foundation, FRISCO, TX, USA

Rating: 5 stars  

Clubfoot is a congenital birth defect that has not received the attention and research that is on par with other birth defects thus far. This organization has a lot of information I never knew about my debilitating condition and their willingness to debate and learn exceeds other non-profits in existence. Many just copy directly from them as far as I can see. Their information on social media has helped me tremendously in making decisions regarding surgery and outcome potential. They also provide advice about genetics that is out of this world helpful. On top of everything, they are the kindest people there are to talk to online. It does not matter whether you speak to Marlie, An, Melissa, Jennifer they are all knowledgeable and kind!

Role:  Client Served
 

Review for Clubfoot Research Foundation, FRISCO, TX, USA

Rating: 5 stars  

As an adult living with CTEV and someone who experienced and researched all information on the internet, I am very happy to provide this non-profit with a review. From all websites, blogs and groups I have researched their information seem to be the original quality education on this subject matter dating back to 2013. They reported issues long before literature captured it and they still provide an objective and quality analysis of research. Simply put their education to both patients, medical professionals and businesses are the BEST! They are delightfully honest and compassionate about helping knowledge move forward and they improve the understanding and interpretation of medical professionals who were let down in their education. I will keep providing you all with a review as it is not often that a non-profit provide such quality information to patients and in such detail all for free. You have helped me access treatments I did not know existed that did not show up in my research and searches. The options you all provide to patients to explore are awesome!

Role:  Client Served