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Grandma Jan

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1 reviews

Review for Second Wind Lung Transplant, Saint Louis, MO, USA

Rating: 5 stars  

My husband received a double lung transplant 4 years ago at Barnes-Jewish Hospital in St. Louis. We (I am his caregiver so it is WE) started the process with many trips from our home in Central Illinois to "qualify" for the transplant list. The attention from Second Wind members made the pre-transplant time much easier and when the actual "gift" came we all celebrated together. The Second Wind meetings help all realize that there is emotional, finacial and physical help if needed. My husband has chronic rejection and returns frequently for Photopheresis treatments. We meet with local members and anyone who is in town for medical updates for dinner and a long, warm social time. I always feel like we have been with family. Being a caregiver can be a very lonely time. Second Wind closes that gap.

I've personally experienced the results of this organization in...

because of the privacy clause I do not know personally who has received support but I do know that $3,000 to $4,000 is needed almost every month for families to help pay for meds, or help with rent, just to name a couple of concerned needs.

If I had to make changes to this organization, I would...

make fundraising more "fruitful." With the current economic situation everyone, from the financial donor to the recipient, is feeling the pinch. And when one needs lifesaving meds or housing there aren't alot of places to turn to.

Role:  General Member of the Public & I write for the monthly newsletter and help with the Annual Second Wind Lung Walk.