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1 reviews

Review for Amyloidosis Support Group, Inc., Wood Dale, IL, USA

Rating: 1 stars  

I was thrown out of the AL FB group without warning or discussion after I got a little testy (steroids anyone?) about having a post deleted without warning or discussion. Wanna feel bad about yourself? Get thrown out of a support group. Fortunately I have supportive family and friends and great doctors and I have achieved complete remission after my SCT in Oct '19. It would have been nice to be able to ask questions of people who have been through it, but oh well. That's no way to run a support group.

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