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Karen Marie A.

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1 reviews

Review for SYNGAP1 Foundation, Washington, DC, USA

Rating: 5 stars  

We have been on the journey with our special needs warrior for 19 years. Every test in the book, countless specialists, therapies and the fight to find the cause. At 17 we found SynGap. Of course I googled and fb searched and found BTG. Without hesitation my reach out was met with love, welcoming, understanding and encouragement to join in a family meet up to learn. From that day I have had a family, a community, my tribe and I know the efforts are tireless to help our kids, to fight for each one!! In 2 years I have seen the encouraging progress and every day I am thankful. It’s home.

Role:  Client Served