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HairLife76

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1 reviews

Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

Our daughter was diagnosed last November 2018 with Sojia Mas. We were lost. Told it's so rare and no one will know what Systemic JIA is, let alone find someone else like you. Until the Systemic jia community opened there arms and helped guide us thru the hardest times of our lives. Learning about what to watch for. Be able to ask questions. It comes down to supporting one another. Our new community.
We attended the Systemic Jia Foundation conference in 2019. The leading Rheumatologists in Systemic jia attended. Learning about Sjia from the experts. Being part of the research study to help find a CURE! The abundance of information. Being around parents like us and showing our Sjia warrior that she is not alone in this fight was so rewarding! The connections we made are life changing! All set up by the Systemic JIA Foundation!
We can not thank the Systemic JIA Foundation enough!
Happy to say we have a 1 year survivor who is thriving!

Role:  General Member of the Public