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Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

My family is very grateful for the Systemic JIA foundation’s work. The foundation provides excellent support for patients and their families and is an incredible resource for up to date and reliable information related to current research. One of my family members was diagnosed with systemic juvenile idiopathic arthritis in 2015. She struggled with management of her condition due to lack of availability or limited medication and a large misunderstanding of the disease. The foundation’s tireless efforts to gain information and adept awareness of refractory complex sJIA case (such as macrophage activation syndrome (MAS) and lung disease (LD)) truly helped her and made a big difference in her lung diagnosis. The Forum is a group of parents and caregivers available at any time to help and sharing experiences with others on their journey. The Forum has been a huge factor towards helping my family build stronger resiliency. If anyone is interested in learning more about the systemic JIA, I recommend watching the systemic JIA foundation videos available on YouTube. As a small non-profit, they do a tremendous job of spreading awareness about systemic JIA and as a result have reached many people to educate them about the signs and symptoms of this condition all over the world. I would encourage anyone seeking to donate to a cause to choose this one. By donating to this cause, you will help save medically fragile children’s lives. To think about it, donating to the systemic JIA foundation in not just a choice, it is saving a life.

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