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Shira Margulies Z.

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1 reviews

Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

This past spring, our two-year-old started getting daily fevers of 104+ and a funny pink rash that moved all around her trunk. She was dismissed by the ER as having a virus and it took seven weeks of daily fever and symptoms before we received a working diagnosis of SJIA. I felt so alone and scared, and I googled desperately for information and for stories from parents of other kids with this disease. The day I found the SJIA Foundation Facebook group, I breathed a sigh of relief. The support and education this group has provided for families dealing with SJIA has made me feel like we’re not alone and like this is something we can handle and deal with. I am so grateful the SJIA Foundation exists and for the work that it does to help our kids get the care they need!

Role:  Client Served