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1 reviews

Review for Systemic Jia Foundation, Cincinnati, OH, USA

Rating: 5 stars  

we were diagnosed in 2016 with sjia We felt so alone in this awful journey of no answers. We found this group and We went to the 2019 sjia conference in Cincinnati. While attending this conference we also had a second opinion appointment. Since then we have been diagnosed with ld and pap. Through this group and going to conference We met some amazing drs and parents all with one goal to cure sjia. it’s really sweet and amazing that one trip could really change our lives completely as we are going on our second trip to Cincinnati. The gratitude I have for this group is so big it’s hard to find the exact words!!

Role:  General Member of the Public