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lwilkielpn

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2 reviews

Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

I am so grateful that I came across DES Action USA website a year and a half ago. It has provided me with invaluable information and education, with so many who work tirelessly to help and support those who have been affected by DES exposure. Education is so important because many (even medical professionals) do not understand DES exposure and the effects it had on those exposed, they do not understand the journey. DES Action provides a place to communicate, bringing us together in a supportive community with others who understand and are happy to offer loving support. It is so comforting to be able to share with those who truly understand the journey.

Role:  Client Served
 

Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

When I was 19, it was confirmed that I was a DES Daughter. At the time the MD explained that I needed to let any Gyn I saw know of my confirmed exposure so that they could follow my pregnancies closely and that due to the cervical changes I had that I would very likely have difficult pregnancies. That was all the information I received. I spent the next 22 years struggling with difficult pregnancies, premature deliveries, miscarriages, multiple gynecologic complications which caused me years of pain. After suffering for so many years I finally agreed to a total hysterectomy, hoping for an end to pain and struggles. 17 years later as issues began to surface again, I fell unto the DES Action website. I am so grateful that I found this site. The wealth of information has not only provided me with knowledge and awareness of the role my exposure had in my life, a realization of my continued need for screenings despite being told I no longer needed them, tools to help me be my own advocate, but also valuable information that is needed for medical providers so correct care is provided. I'm so grateful for this site and to those who selflessly work in our behalf. Lydia

Role:  Client Served