My Nonprofit Reviews

Julie De Forest B. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Julie De Forest B.

67 profile views
1 reviews

Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

My late husband, Doug Booth was a PGA Head Pro and GM at a private golf course in the Bay Area. In July of 2009 while practicing for his US Open qualifying round he showed signs of double vision, seeing two trees near his golfball rather than one. We had an HMO at the time, and he was horribly misdiagnosed, even going through 2 botched endoscopic surgeries of the skull base in the course of 10 months. I took over the research aspect of his illness and learned about chordoma by googling skull base lesions. This search took me to the CF, and ultimately to his highly experienced team of doctors at UCSF. They were able to buy Doug 3 years, and also referred us to MD Anderson for Proton Beam radiation. This picture is of me and Doug on a flight to Boston for the 2013 Chordoma Conference. He sadly lost his battle in July of 2013. As his widow I am forever grateful for the help and guidance we received from the Chordoma Foundation.

Role:  Client Served