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1 reviews

Review for The Corneal Dystrophy Foundation, San Jose, CA, USA

Rating: 5 stars  

The day I was diagnosed with Fuch's, after many weeks of uncertainty, I felt my world had turned upside down. I had never heard of this disease!I was going to go blind! The doctor had told me the news while sitting in the hallway! Matter of factly. With few details. I had to go to work right after that and just could not function. I turned to the internet to find more information and was lucky to discover Fuch's friends. They were an invaluable help in calming me down and getting me to understand the disease. Panic sets in when the doctor gives you bad news. In my case he might have been a great professor but not much of a humanitarian. FF put a friendly face to everything. Restored my peace of life and has been here all the way with instant replies to my questions, shared stories and access to an invaluable, current, website. I have made life long friends after meeting other members at 2 symposiums and keeping in touch through the internet. I can never thank them enough. Br in Calgary, Alberta, Canada

I've personally experienced the results of this organization in...

Continued support.

If I had to make changes to this organization, I would...

Have a symposium every year instead of every 2 years.

What I've enjoyed the most about my experience with this nonprofit is...

Continued support, timely information

The kinds of staff and volunteers that I met were...


If this organization had 10 million bucks, it could...

Totally finance symposiums, help with research.

Ways to make it better...


In my opinion, the biggest challenges facing this organization are...


One thing I'd also say is that...

I heartfully thank every founder for their insight and hard work.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?


Role:  General Member of the Public & I found a safe place where people with my condition share news and help.