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Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

The Chordoma Foundation literally saves lives. I am a patient with this exceedingly rare disease. I reference their website often for the most up to date information and refer others to it for guidance. The Patient Navigators are responsible for advising the patient community and facilitating contact with vetted medical doctors. Before they existed we were truly lost. Alone and with only old information on the internet. They are very responsive to suggestions and work diligently to help find new treatments for this unrelenting disease. They give us hope which is the most important thing.

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