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Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

when I was 10 years old, I was told that I no longer had Hydrocephalus. For the next 13 years I experienced many difficulties, but because I was told I no longer had Hydrocephalus, no one attributed my difficulties to my illness. When I was 23, I had my first revision. Over the past 19 years I have had 11 revisions. My first revision, I found the HA and attended my first conference in SF. It was a very humbling experience to be in a room full of people who have what I have. Up until that time I had never met anyone with my illness. My latest revision was December 2018. I had and ETV. The support that I received from my local chapter was very important to me. Being involved with the HA led me to return to graduate school and become a medical social worker so I can work with patients who have Hydrocephalus.

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