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Amy S.8

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1 reviews

Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

I was born with hydrocephalus in 1977. Growing up I only knew one other person with hydrocephalus. I had my 12th and 13th brain surgeries in 2010 - 2011. At this time a close friend went online to learn more about hydrocephalus and she is the one who introduced me to the Hydrocephalus Association. I thank her to this day. I started to volunteer / attend events in 2011. At these events I have met many wonderful people. Hearing there stories and the various challenges they have been through have made me feel more normal. I appreciate the fact I can be in a room when I am not the only person with a shunt. Not the only person who has ever had multiple brain surgeries. The people I have met have inspired me and I hope I can do the same for someone else out there.

Role:  Volunteer