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Brian M.4

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1 reviews

Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

My first introduction to the CRF was at the Chicago Conference in 2006. Since my experience at that conference, I felt accepted, understood, and included. I was not alone facing a rare eye disease that was stealing my vision, I was now part of something bigger. The CRF helped to bring me from a place where I was facing CHM alone into a family that was there to help. The CRF is more than a group of CHMers getting together to raise money for research, it's also a family that provides support, advocacy, and hope. I have had the privilege of watching the CRF grow over the years, and each time we get together at a conference, we get bigger and stronger. There is great strength in a group of individuals getting together for a common purpose. As a CHMer, you are 1 in 50,000. With the CRF, you are a part of an international organization that was formed to help. This incredible group of individuals has taken our cause to a whole new level, and we have already taken huge steps in the right direction. It has gone from "sorry there is nothing that can be done for you" to ground-breaking research that brings us closer to a cure each day! It's great to be a part of it!

Role:  Board Member