My Nonprofit Reviews
Review for Epilepsy Services Foundation, Inc., Tampa, FL, USA
This organization has helped our family in so many ways and we are so Thankful to have them.
About three and half years ago when our daughter Bailey was 4 she experienced her first seizure out of no where. It was late my husband was deployed and my oldest daughter Rhy was upstairs preparing for bed. Bailey fell asleep on the couch but woke up getting sick about 30 minutes after she fell asleep. I thought it was a stomach virus and was walking her to bathroom only to find I couldn’t understand her and her eyes shot to the side and she dropped. I grabbed her and she just started seizing. Making weird breathing sounds. This was a moment I will never be able to forget. It was terrifying. I was on the phone with 911 they sent a ambulance. In the mean time I was trying to find someone to take my oldest Rhylee because they wouldn’t let her on the ambulance. Had to call my husband and let him know aswell. We were rushed to St. Joseph’s Children’s running hot because they were having a hard time getting her out of the seizure. They said it lasted 20 minutes and after all the testing/ being admitted she was diagnosed with Tonic Clonic seizures and Panayiotopoulos syndrome. We were lost. This cake out of no where. Epilesy Services Foundation stepped up to the plate and helped us with resources and understanding all the testing, medicine options and connecting us with families like ours. They helped us not fee alone. We have enjoyed info sessions, family days out and the yearly walk. In May of 2018 Bailey ended up having a focal seizure at school and so once again we were confused on where this came from. Epilesy Services Foundation stepped up to the plate and served our family greatly. This organization is instrumental in the community. We love them and would be where we are today in this crazy journey with out them.