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Review for Choroideremia Research Foundation Inc, Springfield, MA, USA

Rating: 5 stars  

When the Choroideremia Research Foundation was first created by a group of individuals who lamented that there was no active research in treating our disease, they wanted to change our disease community's lack of hope. Were it not for their advocacy and funding of research, we likely would be decades behind. With multiple novel treatments in trial, hope abounds for ourselves and our children and grandchildren. They represent more than a disease community; they represent hope, and have real results to show delivery on that promise. That hope has kept me going and invigorates me to share that hope with others.

Role:  Board Member