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camurdick

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1 reviews

Review for Dysautonomia Support Network, Johnston, RI, USA

Rating: 5 stars  

I have been a part of DSN since since 2017, when I was searching for answers and understanding. It brought tears to my eyes to see people talk about their experience, their symptoms, and their lifestyle with this disease. For the first time since my diagnosis, I realized I found 'my people'. I have watched DSN be such a huge support for thousands of people everyday, wherever they are in their journey including myself by providing an extensive online library, articles, videos, "Ask the Expert Series, Dr. Dysautonomia and much more to our community . I love that they encourage you to live your best life (not anyone else's, YOURS!) and they help you do it lots of support, outreach, the lifestyle clubs and being able to volunteer at many levels that fits your life to give back, the sky is the limit. I love this organization and cant wait to watch it continue to flourish in 2019 and beyond! It is my safe place- and home to my DSN Family.

Role:  Volunteer