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lwuenstel

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1 reviews

Review for Dysautonomia Support Network, Johnston, RI, USA

Rating: 5 stars  

I am a Registered Nurse who after 18 years of struggling with dysautonomia, finally received a diagnosis. Dysautonomia was something that I never learned about in nursing school. After learning to become my own advocate and still having my nursing blood coursing through my veins, I decided I wanted to work towards raising awareness and advocacy for it. I joined with another dysautonomia non-profit and did worthwhile awareness and support, but once I found Dysautonomia Support Network, I knew I found home!
Dysautonomia Support Network has become my second family. They have accepted me just as I am and poured so much into my life. I know that I am not alone now, that I am surrounded by people who truly get it, and have people who work to invest in my life. I decided to volunteer with DSN and started with moderating my local state support group. After a month or so, I joined the Advocacy Team and soon after was promoted to its Coordinator. The training, professional development, and mentoring have been life-giving. I have now been able to turn a tough and challenging moment in my life into a new found purpose. Each day I get to work on advocacy and awareness and connect with dysautonomia patients. I get to make new friends and family every day as we work towards a common goal: to provide support, education, awareness, and advocacy to those with dysautonomia and it's related conditions.

Role:  Volunteer