My Nonprofit Reviews
Gary L. R.
Review for Multiple System Atrophy Coalition, Charlotte, NC, USA
I first sought medical treatment for a MSA symptom in 2004, and was accurately diagnosed in a teaching hospital in 2008. Like most lay people I had never heard of MSA. I went online, and discovered the MSA Coalition, although they went by a different name back then. I learned much on their website.
I joined their online discussion group about MSA and learned much about living with this disorder. I also was able to give and receive support from people with MSA and current and past caregivers.
I attended their annual conference in Nashville and have now attended three. All have been excellent. They have provided excellent info about MSA, the latest in research, and (what I like best) the opportunity to meet others with this disorder, and to talk directly with new friends I have made.