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Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

My mother was diagnosed with Multiple System Atrophy in 2014. We were lost...doctors didn't know much about the disease and we knew no other people who had it. When we found the Multiple System Atrophy Coalition, it was a great relief. The services and information about MSA (especially the brochure about what MSA is and its symptoms) they provided were invaluable and we used it again and again with our doctors, during ER visits, and just to educate family and friends. We attended one of the MSA Coalition's annual conferences and my mom made friends with others who had MSA. The support was immeasurable. My mom passed last year, and the outpouring of love from the MSA Coalition and the people we met through them was overwhelming and helped us through a very hard time.

Role:  Client Served