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1 reviews

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

In 2013, my husband started losing his balance often enough that it was noticeable. I encouraged him to see our doctor, who blamed it on aging. I pointed out that I was getting older, too, but not walking into walls or struggling to stay on my feet. We made another appointment, this time at a family practice doctor at a major university medical center. After a short test in his office, he sent my husband on to a neurologist.
I had never heard of multiple system atrophy until my husband and his neurologist both started talking about it as a possible explanation of what was happening. Once we heard the term, the first place we went for information was the MSA Coalition. They quickly shipped us DVDs and other information, and Pam Bower of the board quickly responded to every question we asked. After my husband’s diagnosis was confirmed, we made our way to two of the Patient and Caregiver Annual Conferences. These turned out to be invaluable sources of support, friendship, and education. The Coalition even makes these events available online, reaching as many patients and caregivers as possible.
The MSA Coalition has proved itself worthy of our support time and time again. I can’t imagine what it would have been like to face this diagnosis without the deep knowledge of this disease they provided to us.

Role:  Board Member