My Nonprofit Reviews

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Review for American Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Society, Whately, MA, USA

Rating: 5 stars  

I feel extremely fortunate that I found The American ME and CFS Society (AMMES) when I did. Due to an exacerbation of my CFS this past year, I’ve been unable to work. I have faced eviction more than a few times and without the rental assistance AMMES provided, I would have likely wound up living in my car. As sick as I have been, I wouldn’t have survived such an ordeal. AMMES has also helped with other crucial bills such as utilities, car insurance, phone, and much more.
This much-needed, targeted financial aid is extended to those of us with ME/CFS who are living in the United States (U.S.). In fact, AMMES is the only nonprofit organization in the entire country that offers financial help specifically for people with ME/CFS!
My guess is that like me, most people with ME/CFS find the application process of most nonprofits to be frustratingly daunting, exhausting, and humiliating. Often, it can be a day’s, or even weeks-long, energy-sapping nightmare. And because they are unable to understand the symptoms of ME/CFS, especially the devastating impact it has on our ability to remain financially independent, most nonprofits require that all applicants are actively looking for, or have already secured a job, before any aid is provided.
In contrast, AMMES made the application process fast and easy. The staff at AMMES clearly understood - and more importantly - believed me when I said that CFS was the direct cause of my physical, emotional, and financial turmoil. They’re not only incredibly knowledgeable about the disease from a medical and scientific perspective, they know the detrimental impact it has on every area of one’s life.
Additionally, everyone at AMMES has tremendous empathy for ME/CFS sufferers. Even over the phone, their empathy is unmistakable and genuine. Given the lack of understanding from both the public and the medical community for people with ME/CFS, I found their emotional support to be a welcome relief.
Furthermore, it’s obvious that everyone at AMMES has a great passion for helping others with this condition. It’s not only financial aid AMMES provides, but also education, resources, and a variety of other support services. has a ton of excellent information about ME/CFS, and I find the monthly email newsletter to be interesting and personally useful.
Back to my rent and eviction scenario.
Because I was going to receive an eviction notice the next day for nonpayment of rent, AMMES sent me a check overnight for not just one, but two months’ amount in rent. I didn’t need to jump through a bunch of time and energy-consuming hoops to receive help.
I am forever grateful that AMMES has been there for me during some very frightening situations! Thinking about what could have happened to me if this help had not been available still causes a certain amount of fear. However, for the most part, the gratitude I feel far outweigh the feelings of fear I periodically experience.
Thank you, AMMES!


Rachel Kelley

Role:  Client Served