My Nonprofit Reviews
Review for Amyloidosis Support Group, Inc., Wood Dale, IL, USA
I am certain that I would not be thriving today were it not for this support group and the extraordinary Muriel Finkel. I was diagnosed in 2011 and could find little accurate information or medical professionals who knew about the disease other than at the very few medical centers specializing in amyloidosis. Local docs generally had little or no experience with it and access to the experts was difficult at best. Muriel especially and this group in general have facilitate an unimaginable sharing of information and have provided a direct conduit to the experts themselves. The value of the biennial conferences in Chicago cannot be overstated. We not only get to talk directly with the experts and hear about the latest research findings and treatment possibilities but we also bond as a supportive community of patients and care-givers anxious and willing to share our stories and news. What a stunning difference it makes to have hope and to know that you are not alone.