My Nonprofit Reviews

ninadaya - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

ninadaya

14 profile views
1 reviews

Review for Global Genes®, Aliso Viejo, CA, USA

Rating: 5 stars  

As a rare patient advocate, I have been an avid fan of Global Genes for some time A few years back, I read about the conference on their website and decided to attend. My daughter was diagnosed with Spinal Muscular Atrophy (SMA) at 15 months, and I was looking to broaden my perspective and it is during this conference that I fell in love with this very large rare community. Nicole, Amy and her talented team bring hope, inspiration and talent. They empower patients to think outside the box and gain valuable knowledge as well as a life time of friendships and connections. They share many valuable resources at no cost to families giving them the tools they need to be successful as a fledgling founder or patient advocate. I’m pleased to say I have brought many to this conference and it’s been a game changer for them as well. Global Genes is an organization that grows with the times and through its partnerships makes life better for so many of us forever changed by a rare diagnosis.

Role:  Professional with expertise in this field