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Jen MacMillan B.

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1 reviews

Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 5 stars  

Thank GOD for this group! When my niece, Zoee, was diagnosed at two months old we weren’t given the medical terminology (hydranancephaly) for her diagnoses. Through googling we found the Global Hydranancephaly Foundation & right away connected with Ali Harper, founder & president, who gave us lots of helpful information but more importantly...HOPE! We’ve learned so much from our hydran family & are blessed to have their guidance & support.

Role:  General Member of the Public