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Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

I am a parent of a 30 yr old daughter with AHC. Since she was 12, I have had the support, expertise and friendship of a group of dedicated parents, and expert doctors. The AHC foundation helped me understand what AHC so I was able to advocate the right care for my daughter. I have learned to be an advocate, access expert advice and gained life long friends. The AHC foundation encourages parent involvement and offers a family meeting every two years that gives the latest studies to find a cure for AHC. My daughter's quality of life has been improved because we as family are involved in Alternating Hemiplegia of Childhood Foundation

Role:  Client Served