My Nonprofit Reviews
Review for Pseudomyxoma Survivor, Warwick, , United Kingdom
I was diagnosed with Pseudomyxoma in October 2017. I had never heard of this type of cancer before and couldn't even pronounce it to begin with.
All I knew about it after getting my results was that it was a rare type, the doctor "wouldn't wish this on anyone" and that treatment would either be in Basingstoke or Manchester.
It was a time of worry and uncertainty as to what this diagnosis would mean... I did a lot of googling!
I was lucky enough to be put in touch with another PMP sufferer who is now a good friend. I was able to get an insight in to what was to come. After meeting she added me to the Pseudomyxoma Survivor group.
This group not only provided support and reassurance to myself but also to my family too. We were able to learn about other people's experiences and what was ahead of us.
My four week stay in hospital was difficult for me but the messages of support, kindness and delivery of balloons to the ward from the group really helped.
There is always someone there who understands after going through it to give help and advice at any point along the way. I have made many friends through this.
Pseudomyxoma survivor is a very special group.
Thank you for your kind comment, Lynsey!