My Nonprofit Reviews
Review for Pseudomyxoma Survivor, Warwick, , United Kingdom
Pseudomyxoma Survivor is a fantastic charity run by people who have been affected by Pseudomyxoma Peritonei. The charity has helped many patients and carers over the years by supporting them through their initial diagnosis, treatment and after care. The charity runs a buddy scheme whereby newly diagnosed patients can link up with someone who has previously been affected by the disease who can offer support and advice either by meeting face to face, over the phone or via e-mail, whichever suits the patient.
The charity also runs a closed Facebook page with over a thousand members who are able to ask questions, share experiences and offer support to others in the "Facebook family". Applications to join the group can be made via the Pseudomyxoma Survivor website.