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Katie L.1

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2 reviews

Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

When my 13yo son was first diagnosed it was being handled all wrong because they knew so little about chordoma. In a panic I reached out to the chordoma foundation, who got me in touch with a specialist. We have since called our sons surgeon and radiation oncologist our sons earth angel. The truth is so is the CF. If isnt wasnt for them we wouldn't have had the top care. Knowing we were being helped by experts gave us such peace.

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Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

My son was diagnosed with cervical chordoma last year at age 13. We felt very lost and unsure with what we were told from Doctors. Being so rare we quickly learned that we needed someone who new chordoma to help us. I contacted the chordoma foundation and they explained everything and the importance of getting to a chordoma specialist. They helped us with the questions to ask his doctors and gave us the name of the doctor we ended up going with who we now call our sons earth angel. With such a rare cancer and so many doctors not understanding it, the Chordoma Foundation saves lives and gives you peace that someone has your back and knows the research. We will forever be thankful for them and helping in saving our sons life. We are so thankful to have them apart of his TEAM!

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