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Jan J.1

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1 reviews

Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

In the last six months I was diagnosed with clivial chordoma and underwent surgery to remove the tumor which had entered the dura of my brain, was pressing on the optic nerves, and had started to intrude on my brain stem. The Chordoma Foundation has provided me with professional and peer support, helping me learn about this extremely rare form of cancer and what to expect before and after surgery. The daily updates help one to learn from others and that we are not alone in our individual struggles in surviving this nasty disease. The Navigators are always responsive to the individual needs for each person who requests assistance. The Community of patients and caregivers provides a forum where we can connect with others, unload concerns, and share information. Chordoma impacts one in a million people. It changes one's life. The Chordoma Foundation actively supports research in finding a cure and better treatment options for this rare and destructive form of cancer. Thank you.

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