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LoriEngler

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3 reviews

Review for The National Organization For Rare Disorders, Danbury, CT, USA

Rating: 5 stars  

Over the last year I've been on NADF's staff (The National Adrenal Diseases Foundation) and was introduced to NORD. I have been tremendously impressed with the quality and quantity of resources they provide to the rare disease community. Webinars, e-news and the professional support to rare disease community leaders are tremendously valuable and greatly appreciated. We have a lot more to explore with NORD and I welcome the partnership.

Role:  Professional with expertise in this field
 

Review for THE NATIONAL ADRENAL DISEASES FOUNDATION INC, Great Neck, NY, USA

Rating: 5 stars  

I found NADF months after my adrenal insufficiency diagnosis and it was life-changing. Finding myself with a rare disease was extremely isolating and frightening, and suddenly I found a tremendous amount of medical information with direction from an endocrinologist with expertise in this area. I also found support from my local NADF support group, and later became a support group leader for my local community. NADF is a small but very special organization of people who care deeply and are finding ways to reach others with adrenal diseases, conduct research and help others improve the quality of their lives. Most importantly, they are building awareness in the medical community in order to save the lives of undiagnosed patients who ultimately pass away from the condition.

Role:  Volunteer
 

Review for THE NATIONAL ADRENAL DISEASES FOUNDATION INC, Great Neck, NY, USA

Rating: 5 stars  

I have been a member of NADF (National Adrenal Diseases Foundation) since I was diagnosed about 12 years ago and the connection changed my life. I felt lost and alone suddenly finding myself with a rare disease that my friends and family had never heard of. I was desperate to obtain as much information as possible, and found NADF. Immediately, they sent me a packet of information and connected me to my local support group.

Now, years later I am 'paying it forward' as I now actively support NADF. The foundation provides excellent resources to patients of adrenal diseases, always looking to forward to best ways to connect in our communities.

Role:  Volunteer