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Lorlap

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3 reviews

Review for Team Telomere, Inc., New York, NY, USA

Rating: 5 stars  

Team Telomere are always there to support patients and their families not only emotionalyl but with medical insight and recommendations. They are always striving to find new ways to help patients be it through fund raising, bringing our small community together or raising the profile of teleport biology disorders throughout the medical community.

Role:  General Member of the Public
 

Review for Team Telomere, Inc., New York, NY, USA

Rating: 5 stars  

Team telomere has been amazing emotional support through phone calls and online and especially though our week at Camp sunshine meeting other families and learning so much from experts. It is a comprehensive resource for information about telomere biology diseases. The clinical guidelines had been invaluable resource to bring to doctor visits and also to recommend to doctors.

Role:  Client Served
 

Review for Camp Sunshine at Sebago Lake Inc, Casco, ME, USA

Rating: 5 stars  

This remarkable camp is by far the most amazing worthwhile and therapeutic place. The benefits, healing and strength it gives to families who are going through the worse thing imaginable are immeasurable. The staff and volunteers are so incredibly good at what they do. The money donated to this cause is honestly so well spent and the return of having a child like mine who struggle to cope with accepting their diagnosis of a life threatening disease say ‘they wish they could stay because they finally feel like they found somewhere they belong and be happy’ is priceless.

Role:  Client Served